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AAP Grand Rounds 2:29-30 (1999)
© 1999 American Academy of Pediatrics

BIOETHICS

Parents, Professionals Differ in Estimating Burden of Disabilities

Source: Saroj S, Stoskoff BL, Feeny D, et al. Differences in preferences for neonatal outcomes among health care professionals, parents, and adolescents. JAMA. 1999;281(21):1991–1997.

The first 20% of the full text of this article appears below.

Pediatricians need to be available and ready to counsel parents who have to participate in decisions about their seriously ill newborns. Research about decision-making patterns of parents and professionals can provide important insight into this difficult area. This cross-sectional cohort study from Canada compared preferences for selected hypothetical health states of 100 neonatologists from hospitals throughout Canada; 103 nurses from 3 regional neonatal intensive care units; 264 adolescents of whom 140 were extremely low birth weight (ELBW) infants and 124 sociodemographically matched controls; and 275 parents of the recruited adolescents. The main outcome measure was a preference score obtained by direct interviews for 5 hypothetical health . . . [Full Text of this Article]

Douglas S. Diekema, MD, MPH, FAAP
Pediatrics and Medical History & Ethics, University of Washington, Seattle, WA