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PICO
Question: Among parents of children aged 0 to 17 years, what is their interest in whole-genome sequencing of newborns and what factors influence this interest?
Question type: Descriptive
Study design: Survey
Investigators from Case Western Reserve University and the University of Michigan surveyed parents about their interest in whole-genome sequencing (WGS) for a hypothetical future newborn. The survey was conducted as part of the C.S. Mott’s Children’s Hospital Poll on Child Health, which is administered to a nationally representative sample of US parents and nonparents. For this study, investigators oversampled parents who had children aged 0 to 17 years of age living in the household and racial/ethnic minorities.
All participants received a brief written explanation about genes and health, and were informed that WGS may give information about future risk of different diseases. Participants were randomized …
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